Ethics, Genomes, and Indigenous Communities

Wednesday, November 11, 2020. 4:00 pm
Speaker
Nanibaa' Garrison
Krystal Tsosie
Event Sponsor(s)
Program in Science, Technology and Society, African and African-American Studies, Center for Comparative Studies in Race and Ethnicity, Center for African Studies, McCoy Family Center for Ethics in Society, Center for Biomedical Ethics, Digital Civil Society Lab, Department of Communications, Program in History and Philosophy of Science, Department of Anthropology, the Steve Luby research group, Program in Human Biology, Stanford Earth, Department of Civil and Environmental Engineering, Bio Policy & Leadership in Society, Department of Bioengineering, Center for South Asia, Center for International Security and Cooperation, Institute for Human-Centered Artificial Intelligence, and the Ethics, Society, and Technology Hub
Nanibaa' Garrison, UCLA & Krystal Tsosie, Vanderbilt; Ethics, Genomes, and Indigenous Communities
Speaker(s):
Nanibaa’ Garrison (Navajo), Ph.D. is an Associate Professor at the University of California, Los Angeles. She has appointments in the Institute for Society and Genetics, the Institute for Precision Health, and the Division of General Internal Medicine & Health Services Research. She is a teaching faculty for the UCLA genetic counseling master’s program. Dr. Garrison earned her Ph.D. in genetics at Stanford University, and completed a postdoctoral fellowship in bioethics at the Stanford Center for Biomedical Ethics and the Center for Integration of Research on Genetics & Ethics at Stanford University. Prior to coming to UCLA, Dr. Garrison was an Assistant Professor at Vanderbilt University, University of Washington and Seattle Children’s Research Institute. Dr. Garrison is the recipient of an NIH K01 career development award to explore perspectives of tribal leaders, physicians, scientists, and policy makers on genetic research with tribes. Her research focuses on the ethical, social, and cultural implications of genetic and genomic research in Indigenous communities. Using community-based research approaches, she engages with tribal communities to develop policies and guidance for tribe.

 

Krystal Tsosie, Vanderbilt University, Genomics and Health Disparities, Graduate Student. Tsosie's dissertation is  entitled: A Multi-Faceted Approach towards Conducting Genomics Research in an American Indian Community. Therefore, her aim is to utilize her available genotype and clinical data to create and test a validated multiple logistic regression risk model for PE to examine the genetic and non-genetic determinants that contribute to PE disease risk. Finally, her group is aware that there is a dearth of genetics studies with AI research participants, partially due to historical and cultural incongruities in establishing informed consent. She has a distinct opportunity to examine the ethical complexities of informed consent in an American Indian population. In totality, she presents a genetic, epidemiologic, and bioethical multifaceted approach towards investigating the impact of PE in American Indian women. 
 

 

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This is  an event in the series of speakers for STS 51, a weekly lecture series exploring the intersections of race, racism, and scientific practice