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Duana Fullwiley
Anthropology
Ph.D., University of California, Berkeley and San Francisco, Medical Anthropology (2002)
M.A., University of California, Berkeley, Anthropology (1997)
B.A., University of California, Berkeley, Social Sciences (1994)
Fellowship Appointment Date
2016-2019
I am an anthropologist of science and medicine interested in how social identities, health outcomes, and molecular genetic findings increasingly intersect. In my first book, The Enculturated Gene: Sickle Cell Health Politics and Biological Difference in West Africa (Princeton, 2011), I draw on over a decade of ethnographic fieldwork in the US, France and Senegal. By bringing the lives of people with sickle cell anemia together with how the science about them has been made, The Enculturated Gene weaves together postcolonial genetic science, the effects of structural adjustment on health resources, and patient activism between Senegal and France to show how African sickle cell has been ordered in ethnic-national terms at the level of the gene. The Enculturated Gene won the Royal Anthropological Institute’s 2011 Amaury Talbot Prize for the most valuable work of African Anthropology and the American Anthropological Association’s 2014 Robert B. Textor and Family Prize for Excellence in Anticipatory Anthropology.
Since 2003, I have conducted multi-sited field research in the United States on emergent technologies that measure human genetic diversity among populations and between individuals. As an outgrowth of this research, I have become particularly interested in how scientists engage ideas of genetic "inclusion" in how they enlist participant involvement in specific disease research problems, and how they also grapple with social movements, historical reckoning, data privacy and racial capital. My second book, Tabula Raza: Mapping Race and Human Diversity in American Genome Science (UC Press, 2024), explores these issues in light of how U.S. political concepts of “race” function in genetic recruitment protocols and study designs on complex disease, “tailored medicine,” ancestry tracing, and personal genomics. Tabula Raza won the 2024 Diana Forsythe Prize granted by the Committee for the Anthropology of Science, Technology & Computing of the American Anthropological Association.
As of 2019, I have started new fieldwork on migration from West Africa into Europe. I am concerned with people's personal narratives of success at all costs in light of state sponsored surveillance, the simultaneous rigidity and fluidity of borders (land and sea) aided by new technologies, as well as how people draw from and create various forms of science and knowledge to forge relational trajectories that come to constitute home. This work also interrogates how human-made environmental resource scarcity pushes people to migrate or, rather, to simply move, in their quests for viable futures. This project furthermore investigates new forms of racism engendered by the newest iterations of technologically-assisted and animated border patrolling as the ocean itself is being reconceptualized as a new frontier for salvatory tech options and economic growth in Africa and elsewhere.
My work has been funded by the National Science Foundation, the Robert Wood Johnson Foundation, the Social Science Research Council, the Andrew and Florence White Fellows program in Medicine and the Humanities, the Ford Foundation, and the Wenner-Gren Foundation for Anthropological Research. I have also been an invited scholar at the Centre de Sociologie de l'Innovation in Paris (1997-1998, 2000 and 2002), a USIA Fulbright Scholar to Senegal, a fellow at the School of Social Science at the Institute for Advanced Study in Princeton (2004-2005), and a Robert Wood Johnson Health and Society Scholar at the Harvard School of Public Health (2005-2007). My work was selected for a Scholars Award by NSF's Science & Society Program, co-sponsored by the Directorate of Biology, from 2008-2012.
Since 2003, I have conducted multi-sited field research in the United States on emergent technologies that measure human genetic diversity among populations and between individuals. As an outgrowth of this research, I have become particularly interested in how scientists engage ideas of genetic "inclusion" in how they enlist participant involvement in specific disease research problems, and how they also grapple with social movements, historical reckoning, data privacy and racial capital. My second book, Tabula Raza: Mapping Race and Human Diversity in American Genome Science (UC Press, 2024), explores these issues in light of how U.S. political concepts of “race” function in genetic recruitment protocols and study designs on complex disease, “tailored medicine,” ancestry tracing, and personal genomics. Tabula Raza won the 2024 Diana Forsythe Prize granted by the Committee for the Anthropology of Science, Technology & Computing of the American Anthropological Association.
As of 2019, I have started new fieldwork on migration from West Africa into Europe. I am concerned with people's personal narratives of success at all costs in light of state sponsored surveillance, the simultaneous rigidity and fluidity of borders (land and sea) aided by new technologies, as well as how people draw from and create various forms of science and knowledge to forge relational trajectories that come to constitute home. This work also interrogates how human-made environmental resource scarcity pushes people to migrate or, rather, to simply move, in their quests for viable futures. This project furthermore investigates new forms of racism engendered by the newest iterations of technologically-assisted and animated border patrolling as the ocean itself is being reconceptualized as a new frontier for salvatory tech options and economic growth in Africa and elsewhere.
My work has been funded by the National Science Foundation, the Robert Wood Johnson Foundation, the Social Science Research Council, the Andrew and Florence White Fellows program in Medicine and the Humanities, the Ford Foundation, and the Wenner-Gren Foundation for Anthropological Research. I have also been an invited scholar at the Centre de Sociologie de l'Innovation in Paris (1997-1998, 2000 and 2002), a USIA Fulbright Scholar to Senegal, a fellow at the School of Social Science at the Institute for Advanced Study in Princeton (2004-2005), and a Robert Wood Johnson Health and Society Scholar at the Harvard School of Public Health (2005-2007). My work was selected for a Scholars Award by NSF's Science & Society Program, co-sponsored by the Directorate of Biology, from 2008-2012.